TK2D PATIENT JOURNEY LEAD

Make your mark for patients We are looking for a TK2d Patient Journey Lead who is proactive, scientifically proficient, and empathetic to join us in our Rare & Epilepsy Organization team, based in Milan, Italy.
About the role.
You will play a pivotal role in ensuring that our innovative treatment reaches the patients who need it most, positively impacting the lives of those suffering from TK2d.
Reporting directly to the EU TK2d Head and collaborating with a cross-functional team, you will support the identification, proper diagnosis, and treatment for TK2d patients.
Who you’ll work with.
You will be working in a team that is dedicated to creating a unique patient experience.
This includes partnering with healthcare stakeholders such as neuropediatricians, neuromuscular specialists, geneticists, nurses, and pharmacists, as well as interacting with patient groups to raise awareness and educate on this disease.
What you’ll do.
Partner with healthcare stakeholders to ensure TK2d patients are diagnosed and receive appropriate treatment.
Execute disease awareness and educational programs.
Establish referral programs to facilitate patients are consulted at centers of excellence.
Advocate for TK2d inclusion in mitochondrial and neuromuscular panels.
Map Patients Journeys to understand patient pain points and how to mitigate them.
Interactions with Patient Associations for patient awareness and educational initiatives.
Local point of contact supporting the implementation of approved Access+ programs.
Help healthcare providers navigate the ecosystem to secure funding for patients.
Ensure smooth transition from clinical trials and Access + programs to continuous treatment.
Educate healthcare providers and payors on the safe use of the available treatment.
Support patients through centrally developed patient support programs.
Interested? For this role we’re looking for the following education, experience, and skills.
Bachelor’s degree in life sciences, business, or healthcare required; Master’s degree preferred.
University degree in medicine, pharmacy, or natural sciences.
7+ years in biotechnology/pharmaceuticals with external engagement experience.
5+ years in reimbursement, account management, or KOL development.
Experience in rare diseases, neurology, clinical genetics, or metabolic diseases.
Strong project management and planning skills, and emotional intelligence.
Outcome-driven with a focus on delivering results and fostering collaboration and communication.
Field-based position with up to 70% travel required.
Excellent presentation and interpersonal skills.
Fluency in English and Italian.
Are you ready to ‘go beyond’ to create value and make your mark for patients? If this sounds like you, then we would love to hear from you!  About us  UCB is a global biopharmaceutical company, focusing on neurology and immunology.
We are around people in all four corners of the globe, inspired by patients and driven by science.
Why work with us?  At UCB, we don’t just complete tasks, we create value.
We aren’t afraid to push forward, collaborate, and innovate to make our mark for patients.
We have a caring, supportive culture where everyone feels included, respected, and has equitable opportunities to do their best work.
We ‘go beyond’ to create value for our patients, and always with a human focus, whether that’s on our patients, our employees, or our planet.
Working for us, you will discover a place where you can grow, and have the freedom to carve your own career path to achieve your full potential.
UCB and its subsidiaries encourage diversity and inclusion in the workplace; we are an Equal Opportunity Employer.
We do not discriminate on the basis of race/color/religion/sex/national origin/veteran/disability/age/sexual orientation/gender identity.
Should you require any adjustments to our process to assist you in demonstrating your strengths and capabilities contact us on .
Please note should your enquiry not relate to adjustments; we will not be able to support you through this channel.